Friends, when I started this blog it was to help heal myself. Over the past 5 months, it has become clear to me, that this tool, this blog, can be a medium to which, I can help other children and parents, in their healing and in their needs. The following story is call for help from good people to whom I have known for many years and who are in need of hope. Hope in this case, comes in the form of medical research. Please take the time to read their story and help in anyway you can. I couldn't save my save my child, but, maybe I can help save this one.
A week after Isaiah was born, the call came that would change everything. Isaiah had tested positive for on the state screening. Additional testing confirmed that he did indeed have cystic fibrosis, a genetic disease that strikes the lives of approximately 70,000 babies a year, worldwide. That call changed how Isaiah lives. He uses a nebulizer every day with a special medicine that thins the thick mucous his body produces. He gets a medication put up his nose to help kill bacteria that he might inhale. He wears a compression vest that fills with air and shakes his tiny body to dislodge the thick mucous from his chest. The biggest difference is that he lives his life in near seclusion. He doesnt go to Mommy and Me, he doesnt go to the mall, he doesnt have play dates, during even the grown ups allowed to enter the house must have had a flu vaccine in order to be around him. One infection could be the beginning ot the end. You can help us to help Isaiah, you see the has medication in trials that could change his world b
ut there is no government funding for this, there are only private donations given by people like you and me. We are his future so on June 5th, we will walk for , the Cystic Fibrosis Foundations largest annual fundraiser. Your support means the world to us.